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Programme

SPEAKER PRESENTATIONS: 

Speakers presentations are now available by clicking here.

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The programme for the 13th European Conference on Epilepsy & Society will cover a diverse range of topics that encompass recent social advancements in the field of epilepsy all delivered by world-renowned speakers.

Please click below to view the programme at a glance in pdf format.

 

 

ABOUT THE WORKSHOP

Advocates for epilepsy is an exciting new workshop concept, designed to raise awareness and improve patient care through collaborative practice. The workshop will take place on the 28th of August, prior to the 13th European Conference on Epilepsy & Society, 28th – 30th of August, 2013. The workshop is planned to be highly interactive and will be an excellent learning experience for all participants. Please note that places on the workshop are limited and early registration is encouraged.

WHO SHOULD ATTEND

This workshop will appeal to nurses, people with epilepsy, allied health professionals, carers, psychologists, neuropsychologists, physiotherapists, social workers and teachers. Participants under 35 years of age will be exempt from paying a registration fee. They should however register in advance as limited places are available. In addition delegates from specified countries are entitled to free registration. Please see the registration section below for details.

WHY ATTEND

Participants will learn how to develop strategies to help them better understand and support the individual living with epilepsy, using a person-centred approach. Topics will be presented by a range of experts in the field, and participants will be actively involved through question-and-answer sessions and group discussions.

LEARNING OBJECTIVES

This workshop will address several important areas of epilepsy research, highlighting problems and concerns, and proposing methods to overcome them, with a view to raising awareness and promoting epilepsy research. Participants will gain a practical knowledge of how to become better advocates for people with epilepsy.

All delegates under 35 years of age and delegates from Albania, Estonia, Georgia, Macedonia, Serbia, Russia, Moldova, Ukraine, Bulgaria are entitled to free registration. As space is limited however, please register via the registration system to ensure your place is reserved. Please click here to register

 

TOPICS FOR DISCUSSION

  • Epilepsy: seizures and syndromes
  • Seizure observation
  • Case reports
  • Acute management of seizures
  • Risk of seizures and safety measures
  • Comprehensive epilepsy care
  • Epilepsy everyday activities (sports, driving, work place and travel)
  • Risk factor of pre-disposing to seizures
  • Raising awareness and contributing to better epilepsy research
  • How can I be a better advocate?

 

WORKSHOP PROGRAMME

09:15 – 11:00
Co-chairs: Athanasios Covanis (Greece) and Michael Alexa (Austria)

Introduction from the chairs – Athanasios Covanis (Greece) and Michael Alexa (Austria)
Epilepsy seizures and syndromes – Athanasios Covanis (Greece)
Seizure observation – Aleš Krajnc (Slovenia)
Case reports (and video) – Helen Cross (UK)

11:00 – 11:30 Coffee Break

11:30 – 13:30
Co-chairs: Ljubica Vrba (Slovenia) and Seppo Sarkkula (Finland)

Acute management of seizures – Judita Kolenc (Slovenia), Audrej Adamik (Slovenia) & Mirjana Benedik (Slovenia)
Risk of seizures and safety measures – Phil Lee (UK)
Comprehensive epilepsy care – Agnes Mooney (Ireland)

13:30 – 15:00 Lunch Break

15:00 – 17:00
Co-chairs: Phil Lee (UK) and Anastasia Vassou (Greece)

Epilepsy everyday activities (sports, driving, work place and travel) – Giuseppe Capovilla (Italy)
Risk factors for the development of cognitive problems in persons with epilepsy – Hans Holthausen (Germany)
Raising awareness and contributing to better epilepsy research – Janet Mifsud (Malta)
Conclusion – How can I be a better advocate? Take home messages – Phil Lee (UK)

 

Online registration for the Advocates for epilepsy workshop is now closed. Onsite registration will open on Wednesday 28th August.

Advocates for epilepsy workshop

Registration

€25

All delegates under 35 years of age and delegates from Albania, Estonia, Georgia, Macedonia, Serbia, Russia, Moldova, Ukraine, Bulgaria are entitled to free registration. As space is limited however, please register via the registration system to ensure your place is reserved. Please click here to register

19:00 – 20:00

Welcome Ceremony

President of Slovenian chapter – Matevž Kržan (Slovenia)

IBE President, past EREC chair and Conference chair – Athanasios Covanis (Greece)

EREC chair – Anastasia Vassou (Greece)

 

20:00 – 21:00

Welcome Reception

08:45 – 09:30
DEBATE: Representations of epilepsy in popular culture break down stereotypes
Chair: Sari Tervonen (Finland)

For the motion – Vitomira Loncar (Croatia)

Against the motion – Philip Lee (UK)

 

09:30 – 12:30
What are the alternatives when drugs don’t work?
Chair: Matevž Kržan (Slovenia) and Najib Kissani (Morocco)

Ketogenic diet
Helen Cross (UK)

Vagal nerve stimulation and deep brain stimulation
Christian Elger (Germany)

10:10 – 10:40 Coffee Break

Problems of drug  adherence in epilepsy
Martin Brodie (Scotland)

Is everyone with epilepsy suitable for surgery?
Natalija Krajnc (Slovenia) & Bogdan Lorber (Slovenia)

The future of antiepileptic drug development
Meir Bialer (Israel)

Discussion

12:30 – 13:30 Lunch

13:30 – 15:00
Beyond seizures and medication
Co-Chairs: Svetlana Simic Klobucaric (Slovenia) & Ivan Bielen (Croatia)

Epilepsy: science and superstition
Peter Wolf (Denmark)

Epilepsy and cognition

- Does epilepsy affect memory and cognition? – Reetta Kälviäinen (Finland)
- Antiepileptic drugs and cognition – Guenter Kraemer (Switzerland)

What is the role of epilepsy support groups?
- Panagiota Nasiopoulou (Greece)
- Marietta Remoundos (Greece)

 

15:00 – 15:30 Coffee Break

15:30 – 16:15
Group A: Joining Forces
Building networks – Working with other organisations
Co-chairs: Anastasia Vassou (Greece) & Shirley Maxwell (UK)

Michael Alexa (Austria)
Henrick Peersen (Norway)

15:30 – 16:15
Group B: Employment and Epilepsy
Employment in the open labour market
Co-Chairs: Sari Tervonen (Finland) & Athanasios Covanis (Greece)
Employment in the open labour market
Sari Tervonen (Finland)

He’s got epilepsy. So what?
Dare Troha (Slovenia)

16:15 – 17:00
Group A: Joining Forces – Repeated session
Working with other organisations
Co-chairs: Anastasia Vassou (Greece) & Shirley Maxwell (UK)

Michael Alexa (Austria)
Henrik Peersen (Norway)

16:15 – 17:00
Group B: Employment and Epilepsy – Repeated session
Employment in the open labour market
Co-Chairs: Sari Tervonen (Finland) & Athanasios Covanis (Greece)

Employment in the open labour market
Sari Tervonen (Finland)

He’s got epilepsy. So what?
Dare Troha (Slovenia)

09:00 – 10:00
How to apply Social Media with effect and affection
Co-chairs: Ruud Janssen (Switzerland) & Sari Tervonen (Finland)

How social is your media and how is your social media
Ruud Janssen (Switzerland)

Case Study from Epilepsy Action UK
Mark Morton (UK)

Case Study from the International Diabetes Federation
Isabella Platon (Belgium)

10:00 – 11:00
Women and Epilepsy

Chair: Athanasios Covanis (Greece) and Margaretha Andersson (Sweden)

Epilepsy and women of childbearing age
Torbjörn Tomson (Sweden)

Personal experience
Vitomira Loncar (Croatia)

11:00 – 11:30 – Coffee break

11:30 – 12:45
Switching Brands: what are the issues?
Co-chairs: Martin Brodie (Scotland) and Victoria Dimech (Malta)

Switching brands: what are the issues?
Giuseppe Capovilla (Italy)

Side effects: a personal view
Michael Alexa (Austria)

12:45 – 13:45 Posters and lunch

13:45 – 15:30
Epilepsy Care in Europe
Co-chairs: Athanasios Covanis (Greece) and Igor Ravnik (Slovenia)

Getting numbers right: Initiatives for a Pan-European study of prevalence and cost
Torbjörn Tomson (Sweden)

Epidemiology and burden of epilepsy in Central and Eastern Europe
Alla Guekht (Russia)

Necessity for comprehensive epilepsy care: experience from Croatia
Ivan Bielen (Croatia)

Care in a “wealthy” health system: Does is translate into better outcome ?
Philippe Ryvlin (France)

Epilepsy care in small  European countries (with limited resources): Slovenia
Igor Ravnik (Slovenia)

15:30 – 16:00 Coffee break

16:00 – 17:30
Panel Discussion: Epilepsy care in Europe
Co-chairs: Athanasios Covanis (Greece) and Igor Ravnik (Slovenia)

Where are we after the European Declaration
Janet Mifsud (Malta)

Making the most of Epilepsy Day
Ann Little (Ireland)

Jelko Kacin MEP (Slovenia)

Panel discussion: Mike Glynn (Ireland), Janet Mifsud (Malta), Alla Guekht (Russia), Ivan Bielen (Croatia), Torbjörn Tomson (Sweden), Philippe Ryvlin (France) & 2 PWE (TBC)

17:30
Close of Conference
Athanasios Covanis (Greece) & Anastasia Vassou (Greece)